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Overcoming Tuskegee: How To Establish Black Trust in Clinical Trials – BlackDoctor.org [Video]

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Cancer in Children and Adolescents

The Tuskegee Syphilis Experiment has left a painful legacy of medical mistrust in the Black American community. In the 1932-1972 study, researchers withheld treatment from Black men infected with syphilis to observe the disease progression—without informing them of their diagnosis or that treatment was readily available.

“The awful thing about the Tuskegee experiment is people were not injected with syphilis…They did they were not offered a treatment that was known to be effective,” Dr. Jehan El-Bayoumi, an internal medicine doctor, better known as Dr. Gigi, told BDO. This unethical experiment bred deep distrust of the medical system that persists today.

Preventing future harm

However, Dr. Gigi cautions against dismissing medicine entirely due to this past wrong. She advocates nuance in response to Tuskegee’s complex legacy: “We have to be careful is to not throw out the baby with the bathwater,” Dr. Gigi argues.

We must stay vigilant against future harms but also recognize real benefits clinical research …

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