Newborn twins diagnosed with rare condition denied treatment [Video]

A 15 MINUTE DRIVE. A FAMILY FROM SAINT JOSEPH, MISSOURI, IS SEARCHING FOR ANSWERS AFTER THEIR INSURANCE COMPANY DECLINED TO COVER MEDICINE FOR THEIR NEWBORN TWINS WITH A RARE CONDITION. KMBC NINE NEWS DENNIS EVANS IS AT SAINT LUKE’S HOSPITAL AFTER SPEAKING WITH THOSE PARENTS. IT WAS JUST DAYS AFTER THE TWINS WERE BORN HERE AT SAINT LUKE’S HOSPITAL THAT THROUGH TESTING, THE FAMILY FOUND OUT THAT THE BOYS SUFFERED FROM A RARE MUSCULAR CONDITION. ONE THAT WITHOUT THE PROPER TREATMENT AND MEDICATION, WOULD LEAD TO A LIFE EXPECTANCY OF LESS THAN TWO YEARS. THE CONDITION IS CALLED SPINAL MUSCULAR ATROPHY. IT’S A GENETIC CONDITION THAT AFFECTS NERVES AND MUSCLES, CAUSING PROGRESSIVE WEAKNESS AND WASTING AWAY. THE TWINS, ELI AND EASTON, WERE DIAGNOSED WITH THE CONDITION JUST DAYS AFTER THEY WERE BORN. THE PARENTS SAY THEIR COMPANIES INSURANCE HAD JUST CHANGED COVERAGE AND THE MEDICATION NEEDED TO TREAT THE BOYS …