How I Found Out I Had Myelofibrosis – Ben | The Patient Story [Video]

Battling fatigue, night sweats, and the burden of symptoms, Ben knew something wasn’t right. Meet Ben Hohenbrink, a resilient husband and father of two, whose journey with myeloproliferative neoplasms (MPNs) began with a diagnosis of essential thrombocythemia in 2012. Ben’s story took a challenging turn when he was diagnosed with myelofibrosis almost a year ago.

Despite initial dismissals from doctors, Ben’s self-advocacy and determination led him to seek second opinions and find a supportive medical team. His perseverance has not only improved his quality of life but has also made him a strong advocate for others facing similar health challenges.

Ben’s experience highlights the importance of self-advocacy, seeking second opinions, and the impact of a supportive medical community. Join us as Ben shares his journey, from the initial symptoms to navigating treatments and advocating for change in the MPN community.

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Video Chapters

0:00 Meet Ben
0:30 Flags in Ben’s Bloodwork
9:10 Initial Symptoms of Myelofibrosis
12:00 Ben’s Diagnosis
18:30 Myelofibrosis Treatments
24:00 Importance of Self-Advocacy
29:00 Having Gratitude in the Midst of Trials

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How I Found Out I Had Myelofibrosis – Ben | The Patient Story
https://youtu.be/_Cm6xfOvfhM