Celine Dion documentary: Harrowing moment director Irene Taylor found ‘so uncomfortable’ to film | Exclusive [Video]

When Irene Taylor signed on to direct a documentary on Céline Dion‘s monumental career, she had no idea the songstress had been privately battling a rare, life-altering illness. Neither did Dion.

It wasn’t until half way through filming I Am: Céline Dion that the 56-year-old received an affirmative diagnosis, with doctors confirming the debilitating symptoms she had been experiencing on-off for 17 years were signs of Stiff Person Syndrome.

And with that, everything, as Dion and Taylor knew it, had officially changed.

Watch the video above.

Director Irene Taylor, pictured here with Céline Dion at the I Am: Céline Dion premiere, did not know of Dion’s diagnosis when she signed onto the project. (Getty)

“Before we started filming, I was told she had an illness but they didn’t quite know what it was,” Taylor tells 9honey …

Tags Pediatric Oncology Care, Symptom Awareness, Symptom Check